Epilepsy and me

Today is International Epilepsy Day, which is the chance to raise greater awareness of an often misunderstood condition. To tell us about how epilepsy has not only affected her life
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Sarah with her family

World Down Syndrome Day 2019

Yesterday evening, after the chaos of teatime and as I was manically tidying up the mess, the kids were playing around me. I’d only popped out to dispose of a
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Autism and stimming

Chances are that if your child is autistic and you’ve read up on it, you would have come across something called stimming. But what actually is it? Is it something
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Aimee and her son freddie

Rare Disease Day 2019

Today is Rare Disease Day and events are taking place up and down the country to raise awareness of the impact of rare diseases. Here, Aimee Mann tells us what
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Carly and her autistic girl power t-shirt

Autism and celibacy

As monthly columnist for My Family, Our Needs, most of my articles are family based. However, in the spirit of Valentine’s Day (and apart from references to being a tired
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Liberty Warren-Green who speaks about the autistic meltdowns she experienced

Autistic meltdowns

Lots of autistic children will experience meltdowns and watching them go through it can be really distressing for parents. Especially if you don’t know how to help them. Here, we
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Blogging and BAPS - BAPS 2018 winner Tina's workstation, computer, coffee and 2 BAPS Awards!

Me, blogging and BAPS

If you started to read this hoping that you would gain some insight into how to master the world of blogging and understand the subtle abbreviations that get thrown into
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Youssef showing his support for the Treat Me Well campaign

Learning Disability Week 2018

This week is Learning Disability Week 2018 and the focus is on Mencap’s Treat Me Well campaign. 1200 people with a learning disability die avoidably in hospital, every year. Mencap’s
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Gemma's son Thomas

Chromosome Disorder Awareness Week

This week marks the 5th Global Rare Chromosome Disorder Awareness Week. Raising awareness, offering support to families and spreading the word about Rare Chromosome Disorder are all high on the
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