Chromosome Disorder Awareness Week
This week marks the 5th Global Rare Chromosome Disorder Awareness Week. Raising awareness, offering support to families and spreading the word about Rare Chromosome Disorder are all high on the
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Real life blogs / Page 2
Read blog posts from parents and young disabled people as they share stories in their own words. If you feel like you're the only parent going through it, these blogs may make you think differently.
My mental health journey as a Dad and carer – a new chapter
In support of Men’s Health Week 2018, yesterday we shared the first part of Marc Carter’s mental health journey as a Dad and a full-time carer. Here, he kindly shares
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My mental health journey as a Dad and carer
To support Men’s Health Week 2018, My Family, Our Needs has been focusing on the mental health of Dads and male carers. We had a live Twitter chat with Marc
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The BAPS Awards allowed me to fit in
I was absolutely delighted to find out that I had been nominated for the BAPS SEND Blog Awards. There are lots of blogging awards out there but the BAPS (Bloody
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BAPS 2018 Award winner – Autism Kids on Tour – Autism Without Limits
Recently, I was honoured to attend the BAPS Awards 2018. For those of you that don’t know, the BAPS Awards were set up to celebrate SEND bloggers, recognise their valuable
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We had a blast at the BAPS Awards 2018
We’ve had to put our BAPS away for another year but if you missed all the action last week, we’re bringing you the best bits. Which was pretty much all
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My Family, Our Needs interviews Gethin Jones
We are delighted to bring you an interview with the lovely Gethin Jones. Gethin, aside from hosting our BAPS Awards in May, also has his own autism charity, NAI.
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A Parent View of Pathological Demand Avoidance
Following on from our Spotlight on PDA, Caroline Greenwood shares a parent view of Pathological Demand Avoidance (PDA). If you suspect PDA or you have had this diagnosis for your
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BAPS Newcomer Award Winner – Tina Medlock
With nominations for the BAPS Awards opening on Friday, we wanted to showcase one of this year’s winners. Tina Medlock blogs over at Joseph and His Amazing Spectrum Coat and was
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Meet a BAPS winner – The PDA Society
Ahead of BAPS Awards nominations opening on Friday 5th October, we thought we’d share a little about some of this year’s BAPS Awards winners. Meet The PDA Society and the
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‘We rise by lifting others’ BAPS Awards Winner Sarah Roberts
My Family, Our Needs is proud to bring you a blog from our BAPS Awards Winner Sarah Roberts. Sarah blogs over at Don’t Be Sorry and walked away with two
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My child has a chromosome disorder
After putting chromosome disorders in the spotlight this week, My Family, Our Needs brings you a personal story from mum Helen Burness. Helen blogs over at Measuring the Marigold, sharing
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My undiagnosed child – a parent’s story
I’m Maura and this is the story of my undiagnosed child, Jack. I’ve been married to Ronan for 22 years. We live in Draperstown, Northern Ireland with our five boys:
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Children with rare diseases – what it’s really like as a parent
It’s Rare Disease Day, which means so many different things to different families. To raise awareness of what living with a rare disease is really like, Mum of three Jo
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Missing out when you’re a carer – Marc’s story
For Carers Rights Day 2016, the theme is Missing Out which you can read about here. Whether that’s missing out on information, support, benefits or respite, every carer’s story is
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Having a premature baby – what’s it really like?
My Family, Our Needs’ Editor Emma, whose daughter was born at 25 weeks, shares her experience of having a premature baby and offers advice to others in a similar position.
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School Failures – A Mum’s struggle for her daughter
The kids are back at school this week after half-term, but for some parents whose children find school difficult, this may not be good news. Mum, Lisa Williams tells My
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Blog Post: Finding work and myself…
Going back to work, or finding a new job, once you’ve had a baby is tricky. Trying to fit something around your schedule, routines, hospital appointments and care needs can
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Blog Post: My son is disabled by inaccessible facilities
To mark the Changing Places Awareness Day and 10th Anniversary, blogger Rachel George writes about what accessible facilities mean to her son Adam. Summer is coming! Parents everywhere are busy
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What we’re watching
If you’re inconsolable about Game of Thrones finishing and bored of hearing the F word (no, not that one – football), you need some good telly to get your teeth
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