My child has a chromosome disorder
After putting chromosome disorders in the spotlight this week, My Family, Our Needs brings you a personal story from mum Helen Burness. Helen blogs over at Measuring the Marigold, sharing
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Real life blogs / Page 4
Read blog posts from parents and young disabled people as they share stories in their own words. If you feel like you're the only parent going through it, these blogs may make you think differently.
My undiagnosed child – a parent’s story
I’m Maura and this is the story of my undiagnosed child, Jack. I’ve been married to Ronan for 22 years. We live in Draperstown, Northern Ireland with our five boys:
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Children with rare diseases – what it’s really like as a parent
It’s Rare Disease Day, which means so many different things to different families. To raise awareness of what living with a rare disease is really like, Mum of three Jo
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Missing out when you’re a carer – Marc’s story
For Carers Rights Day 2016, the theme is Missing Out which you can read about here. Whether that’s missing out on information, support, benefits or respite, every carer’s story is
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Having a premature baby – what’s it really like?
My Family, Our Needs’ Editor Emma, whose daughter was born at 25 weeks, shares her experience of having a premature baby and offers advice to others in a similar position.
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School Failures – A Mum’s struggle for her daughter
The kids are back at school this week after half-term, but for some parents whose children find school difficult, this may not be good news. Mum, Lisa Williams tells My
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Blog Post: Finding work and myself…
Going back to work, or finding a new job, once you’ve had a baby is tricky. Trying to fit something around your schedule, routines, hospital appointments and care needs can
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Blog Post: My son is disabled by inaccessible facilities
To mark the Changing Places Awareness Day and 10th Anniversary, blogger Rachel George writes about what accessible facilities mean to her son Adam. Summer is coming! Parents everywhere are busy
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What we’re watching
If you’re inconsolable about Game of Thrones finishing and bored of hearing the F word (no, not that one – football), you need some good telly to get your teeth
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Unpicking everything that’s ‘normal’
When I was at school it was common to have a few foreign exchange students join us for a week or two. They seemed so exotic. Their clothes were brighter,
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