Epilepsy and me

Today is International Epilepsy Day, which is the chance to raise greater awareness of an often misunderstood condition. To tell us about how epilepsy has not only affected her life
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World Down Syndrome Day 2019

Yesterday evening, after the chaos of teatime and as I was manically tidying up the mess, the kids were playing around me. I’d only popped out to dispose of a
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Rare Disease Day 2019

Today is Rare Disease Day and events are taking place up and down the country to raise awareness of the impact of rare diseases. Here, Aimee Mann tells us what
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Autism and celibacy

As monthly columnist for My Family, Our Needs, most of my articles are family based. However, in the spirit of Valentine’s Day (and apart from references to being a tired
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Me, blogging and BAPS

If you started to read this hoping that you would gain some insight into how to master the world of blogging and understand the subtle abbreviations that get thrown into
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Chromosome Disorder Awareness Week

This week marks the 5th Global Rare Chromosome Disorder Awareness Week. Raising awareness, offering support to families and spreading the word about Rare Chromosome Disorder are all high on the
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