News story

Liferaft launches for parents of disabled children

6th July 2017 | |

A new digital platform providing a single source of health, medical, social and emotional information that is managed by parents of children with additional needs and can be shared with everyone in the care circle, has just launched.

Kuradocs has announced the online application, Liferaft, which helps parents of children with disabilities and additional needs, to ease the administrative burden that comes with managing complex healthcare and educational needs.

 

What’s the idea behind Liferaft? 

Nicola Murgatroyd founded Kuradocs to develop Liferaft after 28 years caring for her daughter, who was born with spina bifida. Nicola wanted to save parents the time and pain of having to repeat personal information whenever another professional becomes involved in their child’s care and education.

To meet the increasing demand for health and social care, the government and NHS England are driving towards integrated services and more person-centred care, where individuals have much greater involvement in managing their own care. Liferaft is a person-centred single system that supports integrated care by providing all involved in supporting an individual, including family, friends, health, education, or social care professionals, with a single source of information, which is managed by the person being cared for, or by their carer.

Liferaft brings together health, medical, emotional and social care information in a secure online platform, so that up to date information is available to everyone in the care circle. Liferaft supports both the person being cared for and, crucially, the family, by providing a single source of information on the needs, preferences and goals of individuals.

Liferaft allows people with special needs and their parents and carers, to record not only health and medical data but also social, emotional and support care information and is particularly useful when arranging respite care, or completing lengthy forms, such as the Disability Living Allowance application (and in future PIP). The Calendar section also helps with the management of appointments.

How does it work?

The ‘About Me’ section of the portal can be used to record a child’s favourite food, colours, stories, clothing, songs, toys, TV characters and activities and everything to do with their daily routine. This can all be recorded within Liferaft and securely shared with everyone within the care circle.

If a child’s condition changes overnight, such as a temperature going up, or a pressure sore appearing, parents can print off or directly and securely share a Liferaft update to alert others who are transporting, treating, or teaching the child, so that they take additional care.

The portal can be accessed and updated on laptops, PCs and tablet devices, allowing information to be viewed anywhere where there is an internet connection.

Nicola Murgatroyd, founder of Kuradocs, the company behind Liferaft, said, ‘There is a clear directive from the UK Government that care for those with special needs should transition to be person-centred and that we should move away from the ‘treat and fix’ model. There is a host of health-related applications but none integrate health, social, emotional and developmental information and provide the care circle with an understanding of the whole person, as Liferaft does.

‘Integrated care is crucial to help meet the needs of children living with complex conditions. Liferaft enables parents to communicate their child’s needs and preferences to professionals and supports new care models that are designed to ensure everyone gets the best co-ordinated care.’

Learn more about Liferaft and how you can access it.